Huge success!!!

There are no words to adequately convey the feelings we have felt surrounding the epilepsy event today! Today was our first time participating in the Fall Stroll for Epilepsy at UNC Charlotte to benefit the Epilepsy Foundation of North Carolina. We started Team Noosa for Logan to help raise as much money and awareness as we could surrounding this event and our friends and family stepped up...BIG TIME!!!

We have been completely overwhelmed and unbelievably grateful for the extreme generosity of everyone who has donated over the last few weeks as well as the over 50 people who showed up to walk with us! To date you guys have donated close to $7000!! Can you believe it? I didn't mistakenly add a zero....that was seven THOUSAND dollars!!! Are there even words out there to use to say thank you for that? I can't seem to find any. It's absolutely unreal. I realize that it may not have seemed like a big deal for someone to write a check or make the effort to walk with us today, but to us it was HUGE!!!! God has blessed us in so many ways and you guys have done more than your part. We have the most amazing friends and family anyone could have.

From the bottom of our hearts.....thank you.

I was also able to spend time talking with various people about what it is that we can do to help and it sounds like there is plenty. We are going to jump in with both feet and help to get this thing going! There is no reason that epilepsy does not have as much awareness as many other conditions and diseases, so we are going to do our best to help as much as we can. It starts with awareness and ends with a cure. We're on our way!

As far as an update on us, we are in a good place. As least as good as we have been in a while. My sister, Sheri, and her family came this weekend. They were able to walk with us and my brother-in-law and Papa have been enjoying the race festivities this weekend. It is so nice to have them here and we wish we were able to spend more time with them.

Freddie....he is always great. Sleeping so much better these days...he's even taking naps. That's right, honest to goodness naps. And then still going to sleep at night and getting a restful night's sleep. Thank goodness his tonsil surgery is behind us. It appears to have made all the difference. School is still going well also. YAY! He loves Ms. Pam. We are so thankful that this is a wonderful experience for him.

Logan is doing okay. We are still seeing seizures, so they are not controlled yet. He is also sleeping more than he should and pretty "floppy", but we've contacted the neurologist, had some bloodwork done and are going to see what the next step is to help these things. This is one of the things that is so hard with seizures. If we control the seizures with the medication, we run the risk of him being sedated. If we back off of the medication so he is not sedated, we run the risk of more seizures. And if we find the right balance, because he is growing and his brain is growing, it could start all over again. We could also find that no medications or combinations of medications will work. It's a pretty tough road and one of the main reasons that we are so passionate about the fight to find a cure and at the very least, help develop more and better research. For those fortunate enough to find medications that work and live seizure free, it is wonderful. But there are too many people fighting each and every day. And with seizures, they could come on or come back out of the blue. A person could be driving, swimming, bathing, crossing the street, laughing, carrying a child....the list goes on and on and on. To watch your child suffer through this and realize this could be a battle he will face his entire life? Not if we can help it. And we are fighting with God on our side and with him ALL things are possible! That's the power we need!!!!

It's still one step at a time, so today was a huge step. God was definitely there with us, just as he has been all along. So now it's time to roll up our sleeves and get to work.

Everyone has been asking how they could help, so watch out. I may come to give you ways you can help! It's going to take all of us, a little bit at a time to make a difference. I hope you will join us in this fight. Not just for our sweet little Logan, but for everyone who suffers from something. Everyone deserves for others to fight along with them, our focus just happens to be epilepsy.

We're ready for the next step in this journey, with God leading the way and our warriors with us. We are so blessed to have the love and support of so many wonderful people, we want to spread that love and support to as many people and places as we can.

Thanks for following along with us and for all of your support. It was a beautiful day, in so many ways.

Now we are trying to enjoy the end of a big day for everyone. Freddie is sleeping and Logan should be sleeping soon. We look forward to tomorrow and the promises it brings. I even look forward to the challenges these days....well most of the time. It's in the valleys we grow.

Have a wonderful evening everyone!